Public & Societal Benefit (W12) IRS Verified DX Registered 990 on File

EDFOREDS4

EIN: 99-4032296 · CHARLTON, MA 01507-1320 · United States · FY 2025 Data

3 out of 5 58 / 100 Based on one year of filings

Financial strength (30%) 48/100

Reliability (20%) 66/100

Effectiveness (25%) 52/100

Impact (25%) 70/100

Financial data: FY 2025 · Scored 9/13/2026

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CharityAI™ Score

out of 100

Mission Statement

Our mission is to raise awareness of Ehlers-Danlos syndrome and provide support to individuals living with the condition. We are dedicated to educating the public, empowering patients, and fostering a community where no one feels alone. By promoting early recognition and understanding, we aim to reduce the years of undiagnosed suffering associated with this rare and often debilitating disorder.

Financial Overview — FY 2025

$19K

Total Revenue

$13K

Total Expenses

$6K

Net Assets

N/A

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 19.8%

Fundraising Efficiency N/A

Operating Reserve 5.74x

Liability-to-Asset 0.0%

Revenue Diversification 100.0%

Compared with Peers

FY 2025

Compared with 1,223 similar organizations (United States, Public & Societal Benefit, under $100K in expenses), FY 2025.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	19.8%	78.8%	P10P90	Below median
Operating reserve Months of expenses covered by net assets · higher is better	5.7 mo	14.4 mo	P10P90	Below median
Liabilities to assets Total liabilities / total assets · lower is better	0.0%	0.0%	P10P90	Top quarter
Revenue concentration Share of revenue from the largest source · lower is better	100.0%	99.9%	P10P90	Bottom quarter
Surplus margin Surplus as a share of revenue	32.4%	12.7%	P10P90

CharityAI™ Evaluation — 2025

38 / 100

Financial

Reliability

Effectiveness

Impact

Financial Strength (30%) 0

Reliability & Transparency (20%) 51

Program Effectiveness (25%) 42

Impact & Outcomes (25%) 70

Form 990 on File 85% Data Complete

Impact

1 program

Outcome / Program	People Served	Cost / Service	# Completed	Duration
Educate, support empowering patients with Ehlers Danlos Syndrome	300	$10.00	—	Per Year

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Organization Details

EIN: 99-4032296
State: MA
City: CHARLTON
ZIP: 01507-1320
Classification: W12
Category: Public & Societal Benefit
Rating: 3★
Coverage: B
Last Updated: Aug 2026
IRS Ruling Year: 2024
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

★★★★★ 80–100 ★★★★☆ 60–79 ★★★☆☆ 40–59 ★★☆☆☆ 20–39 ★☆☆☆☆ 1–19

A pillar with no data counts as zero. Without impact metrics the score is capped at 59 (three stars): only the charity can supply that data.
The coverage grade (A to D) says how much filing data the score rests on; NONE means there is not enough to rate.
An organization that is not in good standing with its registry (for example a revoked tax exemption) is shown as Not rated.
"Compared with peers" places the charity's key ratios against organizations of the same country, sector and size.

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