Medical Research (H20Z) IRS Verified DX Registered 990 on File

FSHD SOCIETY

EIN: 52-1762747 · ABINGTON, MA 02351-3015 · United States · FY 2023 Data

3 out of 5 55 / 100 Based on 2+ years of filings

Financial strength (30%) 79/100

Reliability (20%) 55/100

Effectiveness (25%) 81/100

Impact (25%) No data yet

Financial data: FY 2023 · Scored 9/13/2026

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CharityAI™ Score

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Mission Statement

Our Promise As long as we are here, no patient need ever face this disease alone. The FSHD Society is deeply committed to working with ingenuity and integrity to accelerate research leading to treatments and a cure. It is the generous support - gifts of time, talent, and treasure - from patients, families, friends, major donors, and sponsors, that make this imperative work possible. Our Mission Find treatments and a cure for FSHD while empowering our families.

Financial Overview — FY 2023

$4.5M

Total Revenue

$4.3M

Total Expenses

$5.0M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 77.7%

Fundraising Efficiency 392.9%

Operating Reserve 13.96x

Liability-to-Asset 21.9%

Revenue Diversification 92.2%

Executive Compensation $660K

Compared with Peers

FY 2023

Compared with 479 similar organizations (United States, Medical Research, $1M–$10M in expenses), FY 2023.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	77.7%	82.4%	P10P90	Below median
Admin expense ratio Management and general / total expenses · lower is better	10.1%	11.9%	P10P90	Above median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	12.3%	1.0%	P10P90	Bottom quarter
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	392.9%	134.1%	P10P90	Below median
Operating reserve Months of expenses covered by net assets · higher is better	14.0 mo	14.9 mo	P10P90	Below median
Liabilities to assets Total liabilities / total assets · lower is better	21.9%	11.5%	P10P90	Below median
Revenue concentration Share of revenue from the largest source · lower is better	92.2%	93.1%	P10P90	Above median
Revenue growth Year over year revenue growth	27.0%	7.0%	P10P90
Expense growth Year over year expense growth	-8.5%	12.8%	P10P90
Surplus margin Surplus as a share of revenue	3.2%	0.2%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2023	$4.5M	$4.3M	$5.0M	77.7%	18
2022	$3.5M	$4.7M	$4.7M	83.4%	17
2021	$5.5M	$4.6M	N/A	—	15

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Organization Details

EIN: 52-1762747
State: MA
City: ABINGTON
ZIP: 02351-3015
Classification: H20Z
Category: Medical Research
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 2018
Foundation Code: 15
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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