NOAHS HOPE HOPE 4 BRIDGET FOUNDATION

The Foundation was organized as a nonprofit philanthropic organization with the mission to support research, raise funds, and inform the public about Batten Disease. The Foundation joins the efforts of two families with children who have Batten Disease in an effort to identify top scientific research efforts leading to the discovery of treatments and a cure for Batten Disease. The Foundation has been created to support research, raise funds, and inform the community about Batten Disease. Batten Disease is a rare, fatal autosomal recessive neurodegenerative disorder that begins in childhood. It is the most common form of a group of disorders called neuronal ceroid lipfuscinosis or NCLS.