Health Care
(E99Z)
IRS Verified
DX Registered
990 on File
THE EHLERS-DANLOS SOCIETY
Financial strength (30%)
75/100
Reliability (20%)
55/100
Effectiveness (25%)
81/100
Impact (25%)
No data yet
CharityAI™ Score
Not yet evaluated
Mission Statement
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, & supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions. We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, & care for the EDS & HSD population. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.
Financial Overview — FY 2025
$9.6M
Total Revenue
$9.4M
Total Expenses
$7.8M
Net Assets
15
Employees
Revenue Sources
Expense Breakdown
Program Expense Ratio
92.3%
Fundraising Efficiency
N/A
Operating Reserve
9.97x
Liability-to-Asset
18.4%
Revenue Diversification
92.1%
Executive Compensation
$99K
Compared with Peers
FY 2025
Compared with 1,779 similar organizations
(United States, Health Care, $1M–$10M in expenses), FY 2025.
This organization
Middle half of peers (P25–P75)
Peer median
| Ratio | This org | Peer median | Position (P10 → P90) | |
|---|---|---|---|---|
|
Program expense ratio
Program expenses / total expenses
· higher is better
|
92.3% | 84.7% |
P10P90
|
Top quarter |
|
Admin expense ratio
Management and general / total expenses
· lower is better
|
4.9% | 11.9% |
P10P90
|
Top quarter |
|
Fundraising expense ratio
Fundraising expenses / total expenses
· lower is better
|
2.7% | 0.0% |
P10P90
|
Below median |
|
Operating reserve
Months of expenses covered by net assets
· higher is better
|
10.0 mo | 11.0 mo |
P10P90
|
Below median |
|
Liabilities to assets
Total liabilities / total assets
· lower is better
|
18.4% | 12.3% |
P10P90
|
Below median |
|
Revenue concentration
Share of revenue from the largest source
· lower is better
|
92.1% | 90.1% |
P10P90
|
Below median |
|
Revenue growth
Year over year revenue growth
|
93.8% | 5.8% |
P10P90
|
|
|
Expense growth
Year over year expense growth
|
109.0% | 5.8% |
P10P90
|
|
|
Surplus margin
Surplus as a share of revenue
|
1.7% | 2.9% |
P10P90
|
Financial History
| Year | Revenue | Expenses | Net Assets | Program % | Staff |
|---|---|---|---|---|---|
| 2025 | $9.6M | $9.4M | $7.8M | 92.3% | 15 |
| 2024 | $5.0M | $4.5M | $7.7M | 69.4% | 6 |
| 2023 | $9.8M | $5.2M | $7.2M | 83.9% | 16 |
| 2022 | $4.5M | $4.1M | $2.6M | 81.1% | 15 |
| 2021 | $4.2M | $3.4M | N/A | — | 14 |
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